tag:blogger.com,1999:blog-1559557015763675662.post7296401509336792060..comments2023-10-28T04:02:00.336-07:00Comments on Every Day Is a Miracle: Zapping a cholesteatomaMarie GGhttp://www.blogger.com/profile/03020201739294303431noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-1559557015763675662.post-73609359535270690482019-07-01T00:49:10.219-07:002019-07-01T00:49:10.219-07:00I replied to you but the site was acting up. I po...I replied to you but the site was acting up. I popped up as unknown. But here is my email. I hope you had better success than I did!! Be well!!Mountain- Rae-Raehttps://www.blogger.com/profile/04552475086895405989noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-30299519571609322902019-07-01T00:46:33.230-07:002019-07-01T00:46:33.230-07:00Marie, I cannot tell you how my sympathy and under...Marie, I cannot tell you how my sympathy and understanding I have for you and going through such a intense medical situation. I personally was born with a hearing loss in my left ear. Suffered through countless ear infections in my adolescence and my adult life. Also I have Chlosteatoma. (Ha! Look at that! You and I are 2 out of 100,000!!) had a surgery a few years ago to remove it. Couldn't afford to do another surgery to go back an remove any remaining infection. Now that my employer has dropped my health insurance, I now have pain, my ear smells, and I am certain the Chlosteatoma has indeed come back. Can't get Medicaid cuz I make too much money. So going to the Dr this week to figure out what to do now. Also diagnosed with Epilepsy, which I believe I also like you had, no barrier between my brain and the bones in my ear. I noticed that your posts are from a few years ago, but I hope you healed well, I hate ear pain and I wanted to let you know I understand what you went through. I thought it was terrifyingly to explain to my loved ones. Wish me luck!<br />To better ear health!!Mountain- Rae-Raehttps://www.blogger.com/profile/04552475086895405989noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-14298908535485970812016-12-14T14:48:53.113-08:002016-12-14T14:48:53.113-08:00Please don't be scared, you will probably have...Please don't be scared, you will probably have to have it removed unless it is so slow that it hardly grows. You will be OK and fingers crossed you'll love a c'toma free life after this. Anonymoushttps://www.blogger.com/profile/14524616097353125612noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-65605351049896905692016-12-14T12:31:41.400-08:002016-12-14T12:31:41.400-08:00What happens if you dont get the c toma removed i ...What happens if you dont get the c toma removed i have one but im super scared..Anonymoushttps://www.blogger.com/profile/10094938566529584266noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-14185509223838617482015-12-01T16:22:04.462-08:002015-12-01T16:22:04.462-08:00I'm so sorry--it is a really hard medical issu...I'm so sorry--it is a really hard medical issue to fix. I had another ear surgery in 2013, but since then I've been doing okay. Hope all goes well with your son!Mariehttps://www.blogger.com/profile/07604805225366129402noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-74319035019663415002015-12-01T03:38:25.549-08:002015-12-01T03:38:25.549-08:00How are you now? We are just going through round 2...How are you now? We are just going through round 2 for my 11 yr old autistic lad. Such an evil disease!Anonymoushttps://www.blogger.com/profile/14524616097353125612noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-59403504745231193632015-06-19T04:45:54.679-07:002015-06-19T04:45:54.679-07:00They are similar just depends what your doctor pre...They are similar just depends what your doctor prefers I would think! I was 16 when I had my first surgery and had one every year since and I have had 2 different surgeons now, I had bled from my ear was completely deaf in my left ear my surgeon was worried which was scary because they are meant to be positive! But I am okay for now fingers crossed! Onto annual checkups :) I found recovery is easier each time! First time I found I couldn't sit up or lay down without supporting my head, it strained my head so much really sore! Was out of sport for 3 month but the next couple times I was fine after a week! But still talking it easy! My first surgery took 6 hours but the other two were only about 3 :) hope your ear is okay! The only problem I had after surgery was being really scared to go under water for the first time post op! Thought my head would fill up with water hahah but it doesn't :)Anonymoushttps://www.blogger.com/profile/07026577848975552298noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-3545697102191720532014-10-03T14:39:43.999-07:002014-10-03T14:39:43.999-07:00I will be having one in 8 months time, I have to u...I will be having one in 8 months time, I have to undergo an MRI scan, not a CT scan, do you think that may imply my situation could be a bit serious? I am 20 years old an have been having trouble with my ear for the past 3 years, but never as a baby or child, which is odd. how was your recovery? and did you suffer with any other problems after your initial surgery?Anonymoushttps://www.blogger.com/profile/00954136919382820952noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-81704918338729158512014-10-03T14:36:52.624-07:002014-10-03T14:36:52.624-07:00how did the operation go?how did the operation go?Anonymoushttps://www.blogger.com/profile/00954136919382820952noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-47434129623281122362012-08-21T15:34:52.006-07:002012-08-21T15:34:52.006-07:00Thanks, all. I appreciate your support more than y...Thanks, all. I appreciate your support more than you can know!Mariehttps://www.blogger.com/profile/07604805225366129402noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-51949436386652977662012-08-20T06:49:29.776-07:002012-08-20T06:49:29.776-07:00Hey, Unusual Lady, I hope you know there are lots ...Hey, Unusual Lady, I hope you know there are lots of people thinking of you and praying for you. You've got the spirit to do this, which is perhaps the most important part. And you can use it for an excuse why I'm beating you at Words with Friends. --Carl <br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-48961971905824252612012-08-20T04:21:30.610-07:002012-08-20T04:21:30.610-07:00This is why 2nd opinions are a good thing. So much...This is why 2nd opinions are a good thing. So much more for you to endure, but you have many praying/pulling for you and 4 delightful men/boys at home that know you'll be your perky self soon and very soon. Hang in there Marie!Nari Maidlnoreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-62983378146179054962012-08-19T21:58:53.266-07:002012-08-19T21:58:53.266-07:00What an informative post about your condition. Dit...What an informative post about your condition. Ditto Tami. We all already know how tough and strong you are!jill ihttp://www.pacificnwseasons.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-45066267166020055002012-08-19T21:20:40.092-07:002012-08-19T21:20:40.092-07:00So sorry that you have to go through all of this, ...So sorry that you have to go through all of this, Marie, but thank goodness it was found now rather than later.Tami Vermillionnoreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-37623933791332235272012-08-19T20:40:37.963-07:002012-08-19T20:40:37.963-07:00My best friend has had two cholesteatoma surgeries...My best friend has had two cholesteatoma surgeries over the last 25 years. He's doing okay now, and I'm glad you've pulled through the first phase of yours as well. I can sure imagine it's uncomfortable mentally as well as physically. Mike's right; you're quite the trooper!David S.https://www.blogger.com/profile/10550358993124198772noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-12896215625822608812012-08-19T12:45:12.712-07:002012-08-19T12:45:12.712-07:00Wow Marie, this article made it much more clear..T...Wow Marie, this article made it much more clear..Thank You ! I am so so so grateful, that this was found when it was, as the risks of what could have happened are way to frightening to think about. Thank God for his blessings. Love Laurie<br />Laurienoreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-39406851437864821932012-08-19T10:14:31.255-07:002012-08-19T10:14:31.255-07:00Thanks for your comment, Laura. I've read that...Thanks for your comment, Laura. I've read that cholesteatomas are much, much harder to obliterate when children have them. I hope that your daughter's ears are okay!Mariehttps://www.blogger.com/profile/07604805225366129402noreply@blogger.comtag:blogger.com,1999:blog-1559557015763675662.post-75313200239667181222012-08-19T07:30:50.537-07:002012-08-19T07:30:50.537-07:00Incredible story!! Wishing you the best and praye...Incredible story!! Wishing you the best and prayers for an uneventful surgery. My 13 year old daughter, who has autism, was diagnosed with bilateral cholesteatoma 1 year ago. She has had 4 surgeries so far. Right ear is doing well. Left ear still needs some work and there is some hearing loss. We are fortunate that there was no damage to the skull. Laura KozlowskiAnonymousnoreply@blogger.com